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Community.
Knowledge.
Compassion.
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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

Please donate to help us continue our mission of providing education, connection, and advocacy services to families living with XLH. Click the link below to donate:

 

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What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...

 



Upcoming Events

Follow the XLH Network Inc. Facebook Page for details on these events.

Click on the pictures to register.

 

      Registration for the Southern California Regional Meetup is open now and closes on May 19th.

 

Registration for XLH Day in Nashville will open June 1st.  Watch this space or the XLH Network Inc. Facebook Page for details.





 

 

 

 

Voice of the Patient Report.

 

Report and transcripts from
The Symposium on Hypophosphatemia

 

 

 

 

 

The XLH Network is a proud member of:

 

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