Board of Directors

  • Bill Coogan, President, Brookfield, Connecticut
  • Geoff Edelson, Treasurer, Andover, Massachusetts
  • Joyce Inman, Secretary, Hattiesburg, Mississippi
  • Becky Mock, Burlington, North Carolina
  • Kathy Buchanan, Broken Arrow, Oklahoma
  • Christopher Younger, Schnecksville Pennsylvania
  • Oliver Gardiner, London, United Kingdom
  • Gin Jones, Massachusetts, USA
  • Rachael Jones, New Mexico, USA

Board Biosketches

Bill Coogan is the President of the XLH Network, Inc.  Bill joined the listserv in 2010. Bill became involved with XLH Network through his sister-in-law. She, her son, & her daughter all have XLH, and he wanted to join the organization to help out in any way possible. Bill is originally from the Bronx. His wife (1 of 14 children) is originally from Brooklyn, and they currently reside in Beacon Falls, Connecticut. Bill and his wife, Liz, are retired.  (Back)

Geoff Edelson is currently serving a three-year term on the Board of the XLH Network, Inc. after joining the XLH Network in 2003. He is originally from Ridgewood, New Jersey where he was diagnosed with a spontaneous case of XLH as a child in 1962. Geoff currently resides in Andover, Massachusetts with his wife and two children. Geoff is currently the Underwater Acoustics Technology Development Manager for BAE Systems Technology Solutions in Merrimack, New Hampshire.  (Back)

Joyce Inman is serving a three-year term on the XLH Network, Inc Board of Directors, and she is currently Secretary of the Board and Chair of the Fundraising Committee. Joyce joined the network listserv in 2009 when her youngest daughter was diagnosed with a spontaneous case of XLH.  Joyce is originally from Titusville, Florida, but she and her family currently reside in Hattiesburg, Mississippi where she is the Director of Composition for the University of Southern Mississippi.  (Back)

Becky Mock is currently serving a three-year term on the Board of the XLH Network, and is the immediate past president.  Becky Mock joined the XLH Network in 2003 and was elected to the Board in 2012.   Becky, her two sisters, her children and grandchild were all diagnosed with XLH as toddlers.  Becky joined the Board to help the XLH Network grow into a fully funded and staffed nonprofit.  Her goal is to improve the infrastructure of the Network  and help establish procedures and practices to guide our work, preserve our history, and prioritize our partnerships with other rare disease coalitions.  Becky lives in Burlington, North Carolina, and she has twenty-five years of nonprofit leadership, program development and management experience.  She is an experienced  advocate for public policy initiatives at the local, state and national level on a range of social justice issues.  (Back)

Kathy Buchanan is currently serving a three-year term on the Board of the XLH Network, Inc. Kathy joined the XLH Network in 2001.  She is originally from Irving, Texas and currently resides in Broken Arrow, Oklahoma.  Kathy's son was diagnosed with what is apparently a spontaneous case of XLH in early 1983 when he was 3 years old. Kathy is employed by the University of Oklahoma-Tulsa as a clinical research nurse in the Surgery Department and is a certified clinical research coordinator.  She has served previously as secretary and president of the XLH Network.  (Back)

Christopher Younger is currently serving a three-year term on the Board of the XLH Network, Inc., and he is chair of the Technology Committee with additional participation in the PR & Communications and Fund Raising Committees.   Chris joined the XLH Network in 2000, and resides in Schnecksville PA, a community 60 miles north of Philadelphia.  Being the only one out of nine children to have XLH, Chris is undoubtedly a spontaneous case, and was diagnosed in the early 1960’s where treatment consisted of ultra high doses of vitamin D.   Chris is married and has one non-affected son.   Though XLH is a once and done occurrence in his family, he still has a passion for XLH advocacy, education and support, and is eager to help fulfill the mission of the organization.   Chris is a Component Design Engineer at Intel Corporation and has worked in the semiconductor industry for 30 years.   Chris has a love for music, plays guitar and mandolin, and in his spare time he and his wife front a band, performing regularly at local clubs and festivals.  (Back)

Oliver Gardiner is currently serving a three-year term on the Board of the XLH Network, Inc.  Oliver joined the XLH Network in 2003 to reach out to other XLH members. Oliver is originally from Oxford, UK and currently resides in London. Oliver was diagnosed with XLH shortly after birth and comes from a family of twelve XLH patients spanning through four generations; his family lives in Oxfordshire and can be contacted through our member page. Oliver is a Professional Video Editor. He works in design and website design, and he has extensively exhibited work as an artist around the world. He is currently working on the committees for Technology, PR & Communication, and Advocacy, Education and Awareness. Oliver chose to serve on the XLH Network, Inc. Board in order to support UK and European XLH Network members.  (Back)

Gin Jones is currently serving a two-year term on the Board of Directors. She is a lawyer, despite being diagnosed with a spontaneous case of XLH, which left her too short for the judges to see her during sidebars at some of the more grandiose benches in historic Massachusetts courtrooms. She has been a member of the XLH Network, Inc. since 2002, and served as the listserv's subscription manager from 2006 to 2011. In her spare time, she writes mystery novels, grows garlic and makes award-winning quilts.  (Back)

Rachael Jones is currently serving a two-year term on the Board of the XLH Network, Inc. Rachael was diagnosed at birth with XLH, the daughter of a spontaneous case, and her two children also have the condition. After attending XLH Day in 2013, she became involved in subsequent XLH Days to help educate parents and children. Rachael is an administrator and teacher of a small private school in New Mexico. She and her family will be moving to Colorado in the summer of 2016. Rachael enjoys writing and someday hopes to become a children’s author. In her spare time she serves as a freelance content editor for an education publishing company.  (Back)

© 2010, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer

Last modified May 15, 2016

We comply with the HONcode standard for trustworthy health information: verify here.

Site provided by Vibrant Creative