Links
Other XLH Related Sites
- Database of PHEX mutations
- Yale Center for X-Linked Hypophosphatemia
- Swedish XLH patient support website
- XLH Research site developed by XLH Network member
- Phosphate Metabolism page at above site
- Phosphate wasting illustration
Genetics-related Websites
- Human Genome Project
- Your Genes, Your Choices Exploring the Issues Raised by Genetic Research
- Online Mendelian Inheritance in Man (OMIM) page on XLH
Genetic Testing
Bone Disorder Websites
Medical Information Websites
Rare Disorder Resource Websites
- Canadian Organization for Rare Disorders (CORD)
- National Organization for Rare Disorders (NORD)
- New Zealand Organization for Rare Disorders
- NIH Office of Rare Diseases
- NIH "Spotlight on Rare Diseases" newsletter
- Rare Bone Disease Patient Network
Advocacy Websites
- Adaptive Products for short people
- Children Living with Metabolic Disorders (CLIMB)
- Contact A Family (UK)
- DiagKNOWsis
- Genetic Alliance
- Genetic Alliance UK
- Health on the Net Foundation
- Irish Patients’ Association
- The Patient Advocate
Similar Disorders
- Autosomal Dominant Hypophosphotemic Rickets (ADHR)
- Hereditary Hypophosphotemic Rickets with HyperCalciuria (HHRH)
- Tumor-Induced Osteomalacia (TIO)
© 2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.
News
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- XLH Day
- Save the Date: 9/10/11 Please join us for XLH Day hosted by Greg & Arlene Iorizzo and their family & friends. Go to XLHDAY.COM for more details.
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- DO YOU HAVE X-LINKED HYPOPHOSPHATEMIA (XLH)?
- A clinical trial is being conducted at several research centers to determine if an investigational agent from Kyowa Hakko Kirin Pharma, Inc. improves the health of adult patients by alleviating the complications associated with XLH. Eligible participan...
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- Welcome to our new website
- Look around: The XLH Network has a whole new look. We redesigned our site to make finding information easier for both families encountering XLH for the first time, and for professionals and more advanced researchers, too.Yet we still have all the features...
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