Patient Registry
The Yale Center for XLH has launched an International Patient Registry for a number of reasons as outlined on their flyer below. If you would like to be added, contact information is shown on the flyer. You can click on the image to view a larger version.
© 2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.
News
-
- XLH Day
- Save the Date: 9/10/11 Please join us for XLH Day hosted by Greg & Arlene Iorizzo and their family & friends. Go to XLHDAY.COM for more details.
-
- DO YOU HAVE X-LINKED HYPOPHOSPHATEMIA (XLH)?
- A clinical trial is being conducted at several research centers to determine if an investigational agent from Kyowa Hakko Kirin Pharma, Inc. improves the health of adult patients by alleviating the complications associated with XLH. Eligible participan...
-
- Welcome to our new website
- Look around: The XLH Network has a whole new look. We redesigned our site to make finding information easier for both families encountering XLH for the first time, and for professionals and more advanced researchers, too.Yet we still have all the features...
Stay Connected
We comply with the HONcode standard for trustworthy health information: verify here.