This page provides a
password-protected
link
to the private webspace archive
produced by members of the
F-HYPDRR mailing list.
To access
this private webspace you must be a member of the mailing
list, and receive specific access instructions from the XLH
Network coordinators.
This private webspace includes:
- anecdotal descriptions of individual
experiences of the syndrome, as well as
- collated discussions and data on dental
problems,
- tips for genetics testing,
- tables describing conventional medications
used in this syndrome
- alternative vs conventional approaches
- the newest research findings and presentation
of research models.
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For example, for public consumption, we are happy
to highlight important topics under discussion in the list,
as for example, this abstract describing the
,
which recommends
continued therapy throughout adulthood.
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We welcome your subscription to this free
mailing list, but please do not bother to click through the
password-protected link unless you are a member.
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