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The XLH Network Inc.

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The XLH Network Inc. is an organization run by volunteers throughout the world and is the only organization dedicated to XLH. There are many benefits of membership in the The XLH Network Inc. and best of all, its Free!

To join The XLH Network Inc. please fill out all of the fields and press the SUBMIT button. Your email address is crucial to us as that is how you will receive your password for access to the Members only Web Space as well as email from the F-HYPDRR mailing list.


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Disclaimer The information on this website and mailing list are provided as a public service and is for informational and educational purposes only. The XLH Network Inc. is not engaged in providing medical advice or professional services. Nothing herein should be used for diagnosing any health problem or disease, nor construed as the prescription of medication or treatment for XLH or any other medical condition. In particular, information on this website does not substitute for professional care. The information provided here is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing doctor. If you have XLH or suspect any problem with your health, consult your doctor or other health care provider. If you have XLH and need information on how to find an XLH-experienced physician, contact The XLH Network Inc. All statements, case histories, stories, narratives, or discussions made within the pages of this website, or within the associated F-HYPDRR mailing list, regarding medical or dental symptoms, treatment, or the results thereof, should not be taken as indications of diagnosis, or proof of relief, cure or even of general use to all. XLH has so many differences in symptom severity that each experience, although similar, should be taken as unique and not necessarily related to the experience of anyone else. All information is for educational purposes only and is not applicable to any individual patient or person. All statements should be checked thoroughly with the source and/or members' own medical supporters and caregivers before adopting or passing on to others. Information on this website and mailing list does not necessarily represent the opinions of other people or organizations that The XLH Network Inc. may be affiliated with. Every effort has been made to ensure the accuracy of the information provided. The XLH Network Inc. can neither be held responsible for such information nor be held responsible for information on linked sites. Confidentiality of data relating to individual patients and visitors, including their identity, is respected. We subscribe to the HONcode principles (http://www.hon.ch/HONcode/Conduct.html?HONConduct895548) of the Health On the Net Foundation (http://www.hon.ch/) The authors of all medical information are identified within each page. Unless otherwise stated, the authors are not medical professionals and have no specialized medical training. More information about the authors can be found on our Coordinators page. A citation Bibliography is available. Last modified June 18, 2005
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Please double check all information before hitting the Submit button. It is important that all information, especially your email address is correct. AOL members, don't forget to add @AOL.COM Luks1979@AOL.COM.

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Last modified Mar 27, 2011

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spontaneous dental abscesses, and low blood phosphorus levels.

© 2002-2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.