By: The XLH Network Inc. Coordinators The XLH Network, Inc. was formed in November 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. Growing daily, The XLH Network Inc. provides members with up-to-date information on diagnosis, treatment and the very latest research. Through the F-HYPDRR mailing list, the XLH Network Inc. helps connect patients with clinicians and researchers as well as with each other. Incorporated and achieving 501(c)(3) tax-exempt status in 2005, we are the only organization in the world specifically dedicated to XLH. Anyone interested in helping us further our mission is encouraged to do so.

Last modified Mar 27, 2011

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spontaneous dental abscesses, and low blood phosphorus levels.

© 2002-2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.