The XLH Network Inc. Coordinators
The XLH Network, Inc. was formed in November 1996 as an
international volunteer group of people affected by or
interested in XLH, or X-Linked Hypophosphatemia. Growing daily,
The XLH Network Inc. provides members with up-to-date
information on diagnosis, treatment and the very latest
research. Through the
F-HYPDRR mailing list,
the XLH Network Inc. helps connect patients with clinicians and
researchers as well as with each other.
Incorporated and achieving 501(c)(3) tax-exempt status in 2005,
we are the only organization in the world specifically
dedicated to XLH. Anyone interested in helping us further our
encouraged to do so.
Last modified Mar 27, 2011
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spontaneous
dental abscesses, and low blood phosphorus levels.
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
is available. Please read our full