The information on this website is provided as a public service and is for informational and educational purposes only. The website, listserv and our activities to raise awareness about XLH have been supported thus far primarily through donations from people affected by these disorders, their friends and loved ones. Currently we have not received any funding from any governmental or public agency, school or university, nor have we received any funding in exchange for any advertising or other promotion.

The XLH Network Inc. is not engaged in providing medical advice or professional services. Nothing herein should be used for diagnosing any health problem or disease, nor construed as the prescription of medication or treatment for XLH or any other medical condition. In particular, information on this website does not substitute for professional care. The information provided here is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing doctor. If you have XLH or suspect any problem with your health, consult your doctor or other health care provider. If you have XLH and need information on how to find an XLH-experienced physician, contact The XLH Network Inc.

All statements, case histories, stories, narratives, or discussions made within the pages of this website, or within the associated F-HYPDRR mailing list, regarding medical or dental symptoms, treatment, or the results thereof, should not be taken as indications of diagnosis, or proof of relief, cure, or even of general use to all. XLH has so many differences in symptom severity that each experience, although similar, should be taken as unique and not necessarily related to the experience of anyone else. All information is for educational purposes only and is not applicable to any individual patient or person. All statements should be checked thoroughly with the source and/or members' own medical supporters and caregivers before adopting or passing on to others.

Information on this website does not necessarily represent the opinions of other people or organizations that The XLH Network Inc. may be affiliated with. Every effort has been made to ensure the accuracy of the information provided. The XLH Network Inc. can neither be held responsible for such information nor be held responsible for information on linked sites. Confidentiality of data relating to individual patients and visitors, including their identity, is respected.

We subscribe to the HONcode principles of the Health On the Net Foundation.

The authors of all medical information are identified within each page. Unless otherwise stated, the authors are not medical professionals and have no specialized medical training. More information about the authors can be found on our Coordinators page.

A citation Bibliography is available here.

Last modified Mar 27, 2011

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spontaneous dental abscesses, and low blood phosphorus levels.

© 2002-2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.