The information on this website is provided as a public service and
is for informational and educational purposes only. The website,
listserv and our activities to raise awareness about XLH have been
supported thus far primarily through donations from people affected
by these disorders, their friends and loved ones. Currently we have
not received any funding from any governmental or public agency,
school or university, nor have we received any funding in exchange
for any advertising or other promotion.
The XLH Network Inc. is not engaged in providing medical advice or
professional services. Nothing herein should be used for diagnosing
any health problem or disease, nor construed as the prescription of
medication or treatment for XLH or any other medical condition. In
particular, information on this website does not substitute for
professional care. The information provided here is designed to
support, not replace, the relationship that exists between a
patient/site visitor and his/her existing doctor. If you have XLH or
suspect any problem with your health, consult your doctor or other
health care provider. If you have XLH and need information on
how to find an XLH-experienced physician, contact
The XLH Network Inc.
All statements, case histories, stories, narratives, or discussions
made within the pages of this website, or within the associated
F-HYPDRR mailing list, regarding medical or dental symptoms,
treatment, or the results thereof, should not be taken as indications
of diagnosis, or proof of relief, cure, or even of general use
to all. XLH has so many differences in symptom severity that
each experience, although similar, should be taken as unique and not
necessarily related to the experience of anyone else. All
information is for educational purposes only and is not applicable to
any individual patient or person. All statements should be checked
thoroughly with the source and/or members' own medical supporters and
caregivers before adopting or passing on to others.
Information on this website does not necessarily represent the
opinions of other people or organizations that The XLH Network Inc.
may be affiliated with. Every effort has been made to ensure the
accuracy of the information provided. The XLH Network Inc. can
neither be held responsible for such information nor be held
responsible for information on linked sites. Confidentiality of data
relating to individual patients and visitors, including their
identity, is respected.
We subscribe to the
HONcode principles of the
Health On the Net Foundation.
The authors of all medical information are identified within each
page. Unless otherwise stated, the authors are not medical
professionals and have no specialized medical training.
More information about the authors can be found on our
A citation Bibliography is available
Last modified Mar 27, 2011
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spontaneous
dental abscesses, and low blood phosphorus levels.
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
is available. Please read our full