By: The XLH Network Inc. Coordinators
The XLH Network Inc. does not sell, rent, exchange or otherwise disclose our mailing
lists or information about our site visitors, subscribers or members. We subscribe to the
of the Health On
the Net Foundation.
The F-HYPDRR mailing list is distributed to members world-wide via the internet.
It is a moderated subscription list, acting as a semi-public forum in which The
XLH Network Inc. members can share information and their experiences. The coordinators
of The XLH Network Inc. endeavor to include medical professionals and researchers
who are particularly interested in XLH, as well as XLH patients and their families.
Although privacy is a matter of serious concern to all of The XLH Network Inc. members,
everyone should be aware that information posted via the internet can never
be guaranteed to be completely confidential.
Last modified Mar 27, 2011
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spontaneous
dental abscesses, and low blood phosphorus levels.
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
is available. Please read our full