Organizations with which The XLH Network Inc. is Affiliated

Compiled by:Scott Schmitz

Rare Genetic Diseases in Children
OrphaNet
National Organization for Rare Disorders (NORD)
Genetic Alliance
Contact A Family (UK)
Genetic Interest Group (UK)
Health on the Net Foundation
Children Living with Metabolic Disorders (CLIMB)

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Last modified Aug 8, 2007

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spotaneous dental abscesses, and low blood phosphorus levels.

© 2002-2007, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.