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How to Contact Us
You may contact us by email according to your area of interest or
concern below.
No email?
Write us.
Board of Directors
F-HYPDRR Mailing List Managers
Webmaster
Scientific Advisory Board
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List Managers
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| Joan Reed, Subscriptions Manager |
Joan.Reed@XLHNetwork.org
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| Larry Winger, Founder and Subscriptions Manager |
Larry@XLHNetwork.org
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| Elaine Jacobson |
(currently on hiatus) |
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Board of Directors
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| Joan Reed, President |
Joan.Reed@XLHNetwork.org
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| Joanne Joseph, Vice President |
Joanne.Joseph@XLHNetwork.org
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| Denise Lentz, Treasurer |
DeniseL@XLHNetwork.org
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| Kathy Buchanan, Secretary |
KathyB@XLHNetwork.org
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| Remaining Directors |
See
Board of Directors
Page
|
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Mailing Addresses
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| United States |
The XLH Network Inc.
Attn: Joan Reed, President
4562 Stoneledge Lane
Manlius, NY
13104 USA
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| United Kingdom |
The XLH Network Inc.
Attn: Larry Winger
Elpha Green Cottage
Sparty Lea, Allendale
Hexham, Northumberland
NE47 9UT United Kingdom
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| Webmaster |
|---|
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Questions, comments, problems regarding this website?
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Jim.Walker@XLHNetwork.org
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Last modified Aug 8, 2007
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spotaneous
dental abscesses, and low blood phosphorus levels.
© 2002-2007,
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
bibliography
is available. Please read our full
disclaimer.
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