F-HYPDRR Mailing List

The F-HYPDRR mailing list is distributed to subscribers world-wide via the Internet. It is a moderated subscription list, acting as a semi-public forum in which the XLH Network Inc. members can share information and their experiences. The coordinators of the XLH Network Inc. endeavor to include medical professionals and researchers who are particularly interested in XLH, as well as XLH patients and their families. Although privacy is a matter of serious concern to all of the XLH Network Inc. members, everyone should be aware that information posted via the Internet can never be guaranteed to be completely confidential.

Members of the XLH Network Inc. have access to the free F-HYPDRR mailing list and members web space.

We ask that all people posting to the F-HYPDRR mailing list follow a few commn sense rules to assure an enjoyable and useful experience for all. We have posted information on virus safety here.

If you already are a member of the XLH Network Inc., you can unsubscribe from the mailing list, or have various subscription options facilitated by contacting us directly via e-mail. A searchable F-HYPDRR e-mail archive, where you can organize your own subscription options, has been maintained since the beginning of the F-HYPDRR mailing list in 1996, so a large body of information about XLH has been accumulated. To protect the privacy of the members of the XLH Network Inc., you must be a member to view this archive.

If you are finding that the number of e-mails from the mailing list is just too much, why not consider the DIGEST option? This option will send you one combined e-mail with all F-HYPDRR messages for that day.

Join The XLH Network Inc.

Last modified Aug 8, 2007

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spontaneous dental abscesses, and low blood phosphorus levels.

© 2002-2007, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.