F-HYPDRR Mailing List
The F-HYPDRR mailing list is distributed to subscribers world-wide
via the Internet. It is a moderated subscription list, acting as a
semi-public forum in which the XLH Network Inc. members can share
information and their experiences. The coordinators of the XLH Network Inc. endeavor to include medical professionals and researchers who
are particularly interested in XLH, as well as XLH patients and their
families. Although privacy is a matter of serious concern to all of
the XLH Network Inc. members, everyone should be aware that
information posted via the Internet can never be guaranteed to be
Members of the XLH Network Inc. have access to the free F-HYPDRR
mailing list and
members web space.
We ask that all people posting to the F-HYPDRR mailing list follow a
few commn sense
to assure an enjoyable and useful experience for all. We have posted
information on virus safety
If you already are a member of the XLH Network Inc., you can
unsubscribe from the mailing list, or have various subscription options
us directly via e-mail. A searchable F-HYPDRR e-mail archive, where
you can organize your own subscription options, has been maintained
since the beginning of the F-HYPDRR mailing list in 1996, so a large
body of information about XLH has been accumulated. To protect the
privacy of the members of the XLH Network Inc., you must be a member
to view this archive.
If you are finding that the number of e-mails from the mailing list
is just too much, why not consider the DIGEST option? This
option will send you one combined e-mail with all F-HYPDRR messages
for that day.
Join The XLH Network Inc.
Last modified Aug 8, 2007
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spontaneous
dental abscesses, and low blood phosphorus levels.
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
is available. Please read our full