Report on the 23rd Annual American Society for Bone & Mineral Research

Date: October 12-15, 2001
By: Larry Winger

(Note from Webmaster - XLH Network in the following report refers to the name given The XLH Network Inc. prior to incorporation March 2, 2005.)

Phoenix, Arizona- The XLH Network has prepared an exhaustive series of reports on new research of direct relevance to XLH, presented this autumn at the ASBMR meeting.

The XLH Network was officially represented at this major bone research conference by Joan and Ron Reed from New York State, and by Larry Winger from northern England. With direct email correspondence to the network from the conference floor, and introductory comments from Elaine Jacobson during the proceedings, the idea was to bring XLH directly to the researchers. As well as bringing the researchers directly to the XLH Network members!

These reports are available for XLH Network members on our Members Web Space, and include:

• Photographs and Overview of the Conference
• Mini-Symposium: Pathogenesis of Genetic and Acquired Hypophosphatemic Disorders
• New Medications in the Pipeline or in Development
• The Biology of PHEX and its Potential Substrates

In addition, reports on the emerging role of the XLH Network in facilitating an in-depth study of XLH in adults, as well as on the effect of exercise on bone growth, are being prepared.

Not only did the XLH Network get to hear news of all of the current research relating to XLH, but this conference enabled us to speak, face-to-face, with those conducting this work. It was a brilliant opportunity to meet some of the researcher and clinical members of the XLH Network personally, and to chat about how we can help move together in improving the management of XLH.

Our understanding of the disorder has increased dramatically as a result of attendance at this meeting, and the networking and contacts we made there will, we are confident, prove of considerable benefit to the XLH Network in the coming years.

Last modified Aug 8, 2007

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spotaneous dental abscesses, and low blood phosphorus levels.

© 2002-2007, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.