XLH Network Meets in Washinton DC
By: Elaine Jacobson
Date: June, 5 2001

(Note from Webmaster - XLH Network in the following report refers to the name given The XLH Network Inc. prior to incorporation March 2, 2005.)

WASHINGTON DC - Elaine Jacobson organized a meeting of the XLH Network to concide with the Genetic Alliance's Human Genome Celebration. Larry Winger and his daughter Breanna came all the way from England. About 10 members were able to attend. It was wonderful connecting faces with the names of people who have been corresponding on the F-HYPDRR mailing list these past few years. The meeting was considered such a success that Elaine promised to organize another meeting before the summer is out.

Last modified Aug 8, 2007

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spotaneous dental abscesses, and low blood phosphorus levels.

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The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.