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XLH Network Creates Members Web Space By: Scott SchmitzDate: Sept 28, 2002 (Note from Webmaster - XLH Network in the following report refers to the name given The XLH Network Inc. prior to incorporation March 2, 2005.) Washington DC-The coordinators of the XLH Network and the F-HYPDRR mailing list have been working for the past several months on a new members web site to provide consolidation of our previous private web space as well as access to new materials of interest to our members. Capabilities of the new Members Web Space summarized here. Content on this web site is considered tentative pending feedback from the XLH Network membership. If you are a registered member of the XLH Network, you will have received a user name and password by email and can enter the Members Web Space now. Our private XLHGeorgia site remains available to members using the same user name and password as that of the Members Web Space. The XLH Network Members web site is one more important step in the process of the creation of a nonprofit organization dedicated to XLH. If there is anything that you would like to see in this new web site, please send an e-mail and we will be sure to respond. We are eager to hear your comments. Last modified Aug 8, 2007 XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spontaneous dental abscesses, and low blood phosphorus levels.
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