Links of Interest

Compiled By: Scott Schmitz and Colin Steeksma

Other XLH Websites
Websites of interest to Medical Professionals
Genetics-Related Websites
Bone Disorder Websites
Websites Related to Rickets
Rare Disorder Resource Websites
Advocacy & Patient Empowerment
Health Directories & General Disease Resources

Other XLH Websites

Pol Harvengt's XLH Website
Larry Winger PhD Old Website
Private XLHGeorgia Site
Swedish XLH Website
Colin Steeksma's FAQ for XLH

Genetics-related Websites

Human Genome Project
Your Genes, Your Choices Exploring the Issues Raised by Genetic Research

Genetic Testing for XLH offered by these firms:

GeneDX
GENDIA
Genetic Alliance
Gene Letter

Bone Disorder Websites

Genetic Alliance
Rocaltrol Information
Little People of America
NHS Direct Entry on Rickets
Bone Biology for Kids
Osteomalcia Link from Dr. Ott's Web Site

Rare Disorder Resource Websites

NIH,Office of Rare Diseases
National Organization for Rare Disorders (N.O.R.D.)
Canadian Organization for Rare Disorders
New Zealand Organisation for Rare Disorders

Advocacy and Patient Empowerment Websites

www.diagKNOWsis.org
Irish Patients Association

Health Directories & General Disease Resources

Disease Resources Website
Health6.com
Long Island Clinical Research Associates
Yahoo Health Directory

Last modified Aug 8, 2007

XLH is also known as X-Linked Hypophosphatemia (sometimes also spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR) Rickets and even Genetic Rickets. Its notable characteristics are bowed legs, short stature, poor teeth formation causing spotaneous dental abscesses, and low blood phosphorus levels.

© 2002-2007, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A complete web-site bibliography is available. Please read our full disclaimer.