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News about XLH and The XLH Network Inc.
You may wish to compare the contemporary news items presented here
with our
timeline of events important to XLH,
which describes the ongoing history of this syndrome, and events
which have shaped our understanding of the condition.
| Apr 24, 2005 |
F-HYPDRR mailing list reaches 500 subscriber mark!
|
| Mar 18, 2005 |
The first
Board of Directors
for The XLH Network Inc is formed.
Joan Reed
named President.
|
| Mar 2, 2005 |
Official incorporation date of The XLH Network Inc. in New York
|
| Nov 29, 2004 |
Joan Reed signs the Certificate of Incorporation for The XLH
Network Inc.
|
| Nov 16,2004 |
Putting patients first: Visions for European Health Care.
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| Sept 21, 2003 |
XLH Network Attended and Presented at ASBMR 2003
Conference
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| Oct 1, 2002 |
XLH Network Creates Members Web Space
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| Sept 28, 2002 |
ASMBR 2002 Report
Members Only
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| March 1, 2002 |
Height Poll of XLH Membership
Members Only
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| Oct 15, 2001 |
ASBMR 2001 Report
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| Oct 12, 2001 |
DC2001 Update
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| Sept 20, 2001 |
XLH Network asks members to support Rare Diseases Act
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| Sept, 2001 |
XLH Network to be represented at ASBMR Annual Meeting,
Phoenix Arizona, USA
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| Sept, 2001 |
Two Young Members of XLH Network Enter Medical School in
UK
|
| Sept, 2001 |
Yves Sabbagh of Montreal wins ASBMR Young Investigator of
the Year award
|
| July 30, 2001 |
John's Hopkins XLH Study Announced
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| July, 2001 |
XLH Meeting In Santa Clara, California
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| July 4, 2001 |
Rickets Cases on the Rise in the North of England
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| June 6, 2001 |
Washington DC XLH Network Meeting
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| May, 2001 |
Four Abstracts Relating to XLH to be Presented at 2001 IBMS
Meeting
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| April 5, 2001 |
Breanna Winger Wins Genetic Alliance Essay Contest
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| April, 2001 |
Adult XLH Evaluation Study Looking for Volunteers
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| March 11, 2001 |
Gene DX Offers a Genetic Test for XLH and Two Other Forms of
Rickets
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In March of 2000, in one of their first cooperative ventures, the
coordinators of the XLH Network created a
flyer.
Last modified Aug 8, 2007
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spotaneous
dental abscesses, and low blood phosphorus levels.
© 2002-2007,
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
bibliography
is available. Please read our full
disclaimer.
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