The XLH Network Inc.
Members Web Space
The XLH Network Inc. members have access to a Members
Web Space
which provides easy
access to information important to The XLH Network Inc. members. Information available
within this secure web space include:
- Search engine access as well as chronological access to all of the e-mail
archives of F-HYPDRR mailing list
- The Members Directory in which members can share information about themselves
- A members chatspace in which The XLH Network Inc. members and medical professionals
periodically come together to discuss specific topics. Scheduled chats are
promoted in the members web spce.
- Formally collated summaries of issues important to The XLH Network inc. community,
and useful news columns and other important notes and information. Summaries
include information and bibliogrophies of important issues to our members.
- The ability for members to request information about medical specialists
in your local area
- Information about regional member gatherings and seminars is shared on the
members web space.
If you are a registered member of The XLH Network Inc., you will have received a
user name and password by email and can enter
the Members Web Space now.
An older private
XLH site
is also available to members using the same user name
and password as that of the Members Web Space.
Join The XLH Network Inc.
Enter
Members Web Space
Last modified Aug 8, 2007
XLH is also known as X-Linked Hypophosphatemia (sometimes also
spelled as hypophosphataemia), X-Linked Hypophosphatemic Rickets,
Familial Hypophosphatemia, Vitamin D-Resistant Rickets (VDRR)
Rickets and even Genetic Rickets. Its notable characteristics are
bowed legs, short stature, poor teeth formation causing spotaneous
dental abscesses, and low blood phosphorus levels.
© 2002-2007,
The XLH Network Inc.
The authors of this web site are not medical professionals, and this
information does not substitute for medical care. Information on
these pages is based on biomedical research, published in
peer-reviewed journals, and international research conferences.
Additionally, in some cases anecdotal information is provided by
subscribers of the F-HYPDRR group, a mailing list for The XLH Network
Inc. A complete web-site
bibliography
is available. Please read our full
disclaimer.
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