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Community.
Knowledge.
Compassion.
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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

REGISTRATION FOR VIRTUAL XLH WEEK 2020 IS NOW OPEN. Click "Events" in the menu.

Become a Member of The XLH Network, Inc.

 

Benefits of Membership include:

 

 • Access to Network's private member-only Facebook group

• Quarterly Newsletter with latest updates on XLH

• Early access to information about Network events

 

Sign Up for Membership


What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...

 


 

 

Voice of the Patient Report.

 

Report and transcripts from
The Symposium on Hypophosphatemia


 

 

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Click HERE to access the PRIME toolkit to help you understand and explain XLH to your family and care team.

 


Upcoming Events

 

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