Benefits of Membership include:
• Access to Network's private member-only Facebook group
• Quarterly Newsletter with latest updates on XLH
• Early access to information about Network events
X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...
Click HERE to access the PRIME toolkit to help you understand and explain XLH to your family and care team.
Report and transcripts from
The Symposium on Hypophosphatemia